She is now 5!
From Worrier To Warrior
Before Rilynn I had always been anxious and paranoid about most things in life and God has helped me overcome that. Yes I worry still but guys, we have a baby that completely depends on us to keep her alive, not just feed her and make sure she sleeps but we have to know numbers and medications. I sleep at night (til 9am: one perk for me of this disease!), we laugh and smile more than most families do, Rilynn doesn't even know she doesn't have kidneys. God gave me Rilynn because he knew I was strong enough to handle it.
Surgery Nightmare
After going back and forth trying to decide if we were going to have a G tube placed for Rilynn instead of her NG tube taped to her face, we finally felt convinced by the doctors that it was the best option. It was described to us as a quick routine surgery the normally leads to the child going home after but in our case, would be a few days since she is on dialysis.
Updates on Rilynn
Tomorrow Rilynn turns 7 months old, since coming home life has seemed to fly by and she is learning and developing so much. Last week we had multiple appointments in Ann Arbor, some good news and some bad. For those of you who dont know, Rilynn had failed her hearing tests, both at her newborn screening and at her 3 month scan, well she finally past it! I always knew she could hear by the way she turns when someone talks, even when the dogs walk across the hardwood floors she turns to find them... just happy to finally have the doctors stop harassing me about it.